Tuesday, 24 June 2014

Women’s experiences of polycystic ovary syndrome diagnosis

Researchers from the MCHRI centre have conducted the first comprehensive study to focus on the Polycystic Ovary Syndrome (PCOS) diagnostic experience.
A sample of 210 Australian women with a previous medical diagnosis of PCOS, aged between 18–45 years were questioned on their experience. The findings of this study highlight the often prolonged and frustrating diagnostic experience women have with PCOS.
Many women in the study reported a delay in diagnosis with 1/4 experiencing a delay greater then 2 years. These extended delays are concerning as it has been previously shown that a delay in diagnosis negatively impact on motivation required to adhere to lifestyle changes required for effective long term PCOS management.
60% of the women reported not being given or referred to information at diagnosis, with half of those given information reporting it was inadequate. Given the diverse range of features of PCOS and the involvement of multiple healthcare professionals, increased primary care engagement is required.

The study emphasises the importance of a timely diagnosis and provision of high quality information on both short and long term quality of life of women with PCOS.

Read the full article here

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