Thursday, 20 August 2015

SPHPM organises the inaugural National TTP Forum

SPHPM researchers from the Transfusion Research Unit organised the inaugural National TTP (Thrombotic Thrombocytopenic Purpura) Forum in Melbourne on 15 August 2015. The Forum was hosted by the national TTP registry which is coordinated by the Transfusion Outcomes Research Collaborative (TORC) – TORC is a collaboration between the Australian Red Cross Blood Service and SPHPM’s Department of Epidemiology and Preventive Medicine.

TTP is a rare, life-threatening disorder in which platelet aggregates form blood clots and mechanically destroy red blood cells. While plasmapheresis based treatment is associated with a good outcome for the majority of patients, it is estimated that the associated mortality rate may be as high as 10 per cent. Treatment for TTP is intensive, associated with complications, and the disease burden for patients and the community is substantial. Over 220 patients have been registered with the national TTP Registry, requiring on average 58 litres of plasma during their treatment.

Around 70 people from all around Australia participated in presentations and discussion at the Forum, covering all aspects of diagnosis and management of TTP and other thrombotic microangiopathies, including updates on national registry data. Attendees included haematologists, nephrologists, transfusion scientists, transfusion and apheresis nurses, and researchers from all around the country.

‘The Forum was a great opportunity to learn about developments in treatment for TTP and to get the most up to date data from the national registry. It is hoped that the TTP registry can help researchers and practitioners to provide the best care and outcomes for people facing this complex and rare disorder,” said Dr Leah Kivivali, Research Fellow, SPHPM Transfusion Research Unit. 

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