Monday, 20 June 2016

SPHPM registry set to transform prostate cancer treatment outcomes

The Prostate Cancer Outcomes Registry - Australia and New Zealand (PCOR-ANZ) housed at SPHPM was launched last week, with help from the Movember Foundation who are seeking to change the face of men's health and improve outcomes for men diagnosed with prostate cancer.

SPHPM hosted the launch at the AMREP Centre and were joined by a number of esteemed guests including State Member for Frankston Mr Paul Edbrooke, Executive Director of Programs for the Movember Foundation Mr Paul Villanti, President of the Urological Society of Australia and New Zealand Professor Mark Frydenberg and Head of SPHPM Professor John McNeil.

Prostate cancer continues to be the most commonly diagnosed cancer among Australian males with more than 18,000 men diagnosed with prostate cancer each year. The Movember Foundation has committed $5.5 million to the PCOR-ANZ to set the standard in collecting and reporting data, which will set new benchmarks to drive quality improvement in clinical and patient reported outcomes.

Associate Professor Sue Evans is head of the Clinical Registry Unit at SPHPM which houses the PCOR-ANZ, the world’s largest national prostate cancer clinical registry, which will bring urologists and oncologists together to redefine what success looks like for prostate cancer treatment and life beyond the disease.

“For the first time, doctors in Australia and New Zealand will have access to patient experience results from around the country. This will equip doctors with the data they need to minimise the risk of life-changing side effects and redefine what success looks like to transform the treatment and care of prostate cancer patients,” said Associate Professor Evans.

One in seven men will be diagnosed with prostate cancer before the age of 75. For men living with prostate cancer, there are a variety of treatment options now available that vary according to the type of prostate cancer diagnosed but can include: active surveillance, hormone therapy, surgery, radiotherapy or a combination of therapies.

New research indicates that compared with 10 years ago, men are now being diagnosed on average three years earlier and with a less advanced stage of the disease, however early registry data has shown some variation in survival rates between men from rural or regional areas and capital cities. Men from higher socioeconomic areas nearly three times more likely to be diagnosed compared to those from the lowest socioeconomic areas.

Paul Villanti said while more men are now surviving prostate cancer, the quality of their lives has, in some cases, been significantly affected and this is where a registry like PCOR-ANZ can benchmark treatments and help clinicians offer the optimal treatment for every man.

"Australia is leading the world in improving how the disease is treated with the launch of the largest national registry that includes patient experiences. This will improve treatment outcomes as clinicians will be able to see the results of their patients on an ongoing basis and benchmark those results at a population level," said Paul Villanti.

“All men, no matter where they’re from – a regional town or a major capital city – will have the best possible chance of surviving and thriving after a prostate cancer diagnosis,” said Professor Frydenberg.

The burden of prostate cancer in Australia continues to be significant, with more Australian men dying from prostate cancer than women from breast cancer. Currently there are around 120,000 Aussie men are living with prostate cancer, but this is expected to rise to 267,000 by 2017.

“Through the launch of this registry, Australia is leading the way in significantly improving how prostate cancer is treated around the world. In the future we will be able to compare clinical outcomes across the globe and, as a result, help minimise side effects of treatment,” said Associate Professor Evans.


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